UNC Hemophilia and Thrombosis Center https://www.med.unc.edu/htcenter Department of Medicine Tue, 23 Sep 2025 16:38:07 +0000 en-US hourly 1 18th Annual Raleigh Family Festival and Walk for Bleeding Disorders! Join us 11/1 https://www.med.unc.edu/htcenter/18th-annual-raleigh-family-festival-and-walk-for-bleeding-disorders-join-us-11-1/ Tue, 23 Sep 2025 16:38:07 +0000 https://www.med.unc.edu/htcenter/?p=5121 Join us!!!  Nov 1st!  Register and join us here!

Join us at the 18th annual Raleigh Family Festival and Walk for Bleeding Disorders. The UNC TarHealers, ECU HTC, and Wake Forest HTC are in competition for the hospital cup!

]]> BDFNC Back to School Webinar! 504, IEP, Oh My! https://www.med.unc.edu/htcenter/5090-2/ Tue, 05 Aug 2025 14:14:49 +0000 https://www.med.unc.edu/htcenter/?p=5090 Back to school 2025 is here!  BDFNC is hosting 3 virtual events, 2 in English and 1 in Spanish to help with this transition.  See flyers for details!

 

English – Back to School with a Bleeding Disorder-1

Spanish – Back to School with a Bleeding Disorder

]]> Hemofil M & Recombinate discontinuing mid 2026 https://www.med.unc.edu/htcenter/hemofil-m-recominate-discontinuing-mid-2026/ Fri, 28 Mar 2025 20:06:02 +0000 https://www.med.unc.edu/htcenter/?p=5060 Takeda stated it would continue to supply both medications to current patients until inventory is depleted or expires in mid-2026.  If you rely on one of these products, please reach out to your specialty pharmacy with any questions.  You should have received a letter in the mail also.  More information can be found at: https://www.bleeding.org/news/breaking-news-takeda-announces-discontinuation-of-two-hemophilia-treatments.

]]> Hurricane Helene Resources https://www.med.unc.edu/htcenter/hurricane-helene-resources/ Thu, 03 Oct 2024 14:24:02 +0000 https://www.med.unc.edu/htcenter/?p=4961 Read more]]> We are very concerned for those impacted by the historic flooding and devastation caused by Hurricane Helene.  We hope all are safe.  Please reach out to us via phone or mychart if there is anyway we can help or be of assistance.  Please see these links for support and help, ways to donate to those in need, and other resources.

https://www.ncdps.gov/our-organization/emergency-management/hurricane-helene

https://www.naswnc.org/page/DisasterResources

https://www.ashevillenc.gov/news/city-of-asheville-prepares-for-tropical-strom-helene-and-shares-preparedness-tips/

https://bleedingdisordersnc.org/resources/assistance-programs

https://www.unchealth.org/announcements/hurricane-helene-resources-updates

]]> US FDA approves Pfizer’s gene therapy for rare bleeding disorder https://www.med.unc.edu/htcenter/us-fda-approves-pfizers-gene-therapy-for-rare-bleeding-disorder/ Thu, 02 May 2024 13:26:43 +0000 https://www.med.unc.edu/htcenter/?p=4924 The U.S. Food and Drug Administration approved Pfizer’s gene therapy for hemophilia B on Friday, the second such therapy for the rare bleeding disorder that typically requires regular infusions of a blood-clotting protein.  Quick article for more information!

]]> Shining a Spotlight on Living with Hemophilia https://www.med.unc.edu/htcenter/shining-a-spotlight-on-living-with-hemophilia/ Fri, 26 Apr 2024 13:45:15 +0000 https://www.med.unc.edu/htcenter/?p=4921 Shining a Spotlight on Living with Hemophilia by our very own Dr. Nigel Key!!

]]> 2024 Camp Carefree Applications live!! July 21-26, 2024 https://www.med.unc.edu/htcenter/2024-camp-carefree-applications-live-july-21-26-2024/ Tue, 19 Mar 2024 16:41:47 +0000 https://www.med.unc.edu/htcenter/?p=4911 Read more]]>

Parents of campers, head to www.CampCarefree.org/campers for a link to the application forms.

Counselors & CITs candidates go here: www.CampCarefree.org/volunteer
Note: Covid restrictions have been lifted this year, however vaccines are still STRONGLY recommended.
And very IMPORTANT: everyone must ALSO complete and submit the required medical information forms, before you will be considered applied for Camp Carefree. (For safety and privacy, these are in paper form.)

We can’t wait to see your smiling faces this summer! ❤💛

]]> Camp Carefree 2023 https://www.med.unc.edu/htcenter/camp-carefree-2023/ Thu, 13 Apr 2023 14:47:50 +0000 https://www.med.unc.edu/htcenter/?p=4812

 

Come and join us at Camp!

July 23-28, 2023

Camp Carefree

See images from past years

 

 

 

]]> Hemophilia Walk https://www.med.unc.edu/htcenter/hemophilia-walk/ Sat, 22 Oct 2022 23:22:09 +0000 https://www.med.unc.edu/htcenter/?p=4710 Collage of photos from the 2022 Hemophilia Walk.

 

Largest Fundraiser of the Year!!!

A BIG THANK YOU to all for supporting this event! The donations that came in moved us up the ranks AND put us in the winning position for the Hospital Cup!

]]> Pharmacy Technician Day https://www.med.unc.edu/htcenter/pharmacy-technician-day/ Tue, 18 Oct 2022 23:17:38 +0000 https://www.med.unc.edu/htcenter/?p=4707 Collage of photos from pharmacy technician day.

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